Advance care planning

Advance care planning contacts in hospitals in the north west metropolitan region of Melbourne

Austin Health Advance Care Planning Department

The Advance Care Planning Department within Austin Health delivers patient services, education and training across the organisation and externally. With the support of the Commonwealth Department of Health it also manages Advance Care Planning Australia initiatives.

http://www.austin.org.au/page/3648

Northern Health Advance Care Planning

The advance care planning section of the Northern Health website includes information in community languages and links to relevant forms and further information.

http://www.nh.org.au/services/advance-care-planning

Peter MacCallum Cancer Centre (Peter Mac) Advance Care Planning

The advance care planning section of the Peter Mac website provides links to further information, including an Advance Care Planning brochure and forms.

https://www.petermac.org/services/treatment/advance-care-planning

Royal Melbourne Hospital Advance Care Planning

The advance care planning (for health professionals) section of the Royal Melbourne Hospital website provides links to further information.

The page also links to an Advance Care Planning brochure in various languages for patients.

https://www.thermh.org.au/health-professionals/clinical-services/advance-care-planning

Werribee Mercy Hospital (of Mercy Health) Advance Care Planning

The advance care planning section of Mercy Health’s website provides links to further information, including an Advance Care Planning guide, brochure and forms.

http://www.mercyhealth.com.au/hcmhs/services/a-c/Pages/AdvanceCarePlanning.aspx

Western Health Advance Care Planning

The advance care planning section of Western Health’s website provides links to further information, including an Advance Care Planning brochure and forms.

http://www.westernhealth.org.au/Services/Advance_Care_Planning/Pages/default.aspx

Advance care planning for doctors and General Practitioner (GP) teams

Royal Australian College of General Practitioners (RACGP) Advance Care Planning Position Statement.

The RACGP Position Statement on Advance Care Planning includes links to information and resources.

http://www.racgp.org.au/your-practice/business/tools/support/acp/

HealthPathways Melbourne (for GP teams) including advance care planning pathways

HealthPathways Melbourne, an initiative of the Eastern Melbourne Primary Health Network (EMPHN) and North Western Melbourne Primary Health Network (NWMPHN), is an online portal designed to be used at the point of care by GP teams working in the northwest and eastern regions of Melbourne. HealthPathways aims to guide best-practice assessment and management. HealthPathways includes detailed information and links on advance care planning.

https://melbourne.healthpathways.org.au

Next Steps: advance care training videos for doctors (DHHS, Victoria)

Next Steps is a series of videos designed to assist doctors to communicate with people about advance care planning.

https://www2.health.vic.gov.au/hospitals-and-health-services/patient-care/end-of-life-care/advance-care-planning/acp-resources

Advance care planning resources for GPs

The care search website includes a section devoted to advance care planning resources for GPs. These inlcude an Advance Care Planning Guide for General Practice; The Advance Care Planning conversation: A 5 Step General Practice Guide; and Frequently Asked Questions for General Practice.

https://www.caresearch.com.au/caresearch/tabid/4122/Default.aspx

My Wishes, My Plan, advanced care planning as part of My Health Record of the Australian Digital Health Agency

The Australian Government’s My Health Record is organised under the banner of the Australian Digital Health Agency. It is a personalised online summary of individuals health information, which people can choose to share with doctors, hospitals and other healthcare providers. It can include information such as: allergies; current conditions and treatments; medicines; pathology reports or diagnostic imaging scans.

Advance care planning documentation can be uploaded to people’s My Health Record.

https://myhealthrecord.gov.au/internet/mhr/publishing.nsf/Content/acp

Advance care planning tools and general information (Victoria and Australia)

Planning and decisions about dying and death (Better Health Channel website)

The Victorian Government’s Better Health Channel website includes a section on planning and decisions about dying and death. This includes information on advance care planning, along with other sections on topics such as: Planning where you want to die; Financial considerations for end of life; and Coming to terms with dying.

https://www.betterhealth.vic.gov.au/servicesandsupport/end-of-life-and-palliative-care-services

Advance care planning section of Victorian Department of Health website

The advance care planning section of the Victorian Government Department of Health  includes links to relevant policies and legislation, best practice guides and advice for clinicians.

https://www2.health.vic.gov.au/hospitals-and-health-services/patient-care/end-of-life-care/advance-care-planning

Dying to Talk Discussion Starter on the Dying to Talk website

The Dying to Talk Discussion Starter is a resource on the Dying to Talk website of Palliative Care Australia. The website aims to reach into the community to normalise dying in Australia and to help Australians work out what’s right for them at the end of their lives.

The Dying to Talk Discussion Starter is a guide designed to help people initiate conversations with family and friends. It is organised into five sections: Reflecting; Talking; Reviewing; Follow-up activities; Extra reflection prompts

http://dyingtotalk.org.au/discussion-starter/

MyValues website

MyValues is a set of specially constructed statements designed to help people identify, consider and communicate their wishes about the medical treatment they would want in the later stages of life. The tool is free to use and generates a summary statement for people to keep and use. Published by Barwon Health, MyValues is funded and supported by the Victorian Government Department of Health and Human Services (DHHS).

https://www.myvalues.org.au/

start2talk website (planning ahead, dementia focus)

The start2talk website is designed for people who want to prepare for a time when they cannot make their own decisions due to injury or a condition such as dementia; people with early signs of memory loss or with a diagnosis of dementia; family carers of a person with loss of capacity because of an illness; and health and community care professionals who want to promote planning ahead with the individuals or communities they work with.

http://start2talk.org.au/

My Wishes, My Plan, advanced care planning as part of My Health Record of the Australian Digital Health Agency

The Australian Government’s My Health Record is organised under the banner of the Australian Digital Health Agency. It is a personalised online summary of individuals health information, which people can choose to share with doctors, hospitals and other healthcare providers. It can include information such as: allergies; current conditions and treatments; medicines; pathology reports or diagnostic imaging scans.

Advance care planning documentation can be uploaded to people’s My Health Record.

https://myhealthrecord.gov.au/internet/mhr/publishing.nsf/Content/acp

Advance Care Planning Australia

This is the link to the  Advance Care Planning Australia website.

https://www.advancecareplanning.org.au/

Palliative Care Victoria 

The Palliative Care Victoria website has links to various sources of information relevant to advance care planning.

Advance care planning for patients and families
https://www.pallcarevic.asn.au/library/for-families-patients/fp-advance-care-planning/

Planning ahead for patients and families
https://www.pallcarevic.asn.au/library/for-families-patients/fp-planning-ahead/

Advance care planning for professionals
https://www.pallcarevic.asn.au/library/for-healthcare-professionals/hp-acp/

Palliative Care Australia 

The Palliative Care Australia website provides a summary of advance care planning and links to further information in each state and territory.

http://palliativecare.org.au/support-and-services/advance-care-planning/

End of life law, including powers of attorney, medical consent and refusal of treatment

Victorian Department of Health

The advance care planning section of the Victorian Government Department of Health  includes a link to an overview of the legal framework for advance care planning in Victoria and a link to the new Medical Treatment Planning and Decisions Act (2016) which has a default commencement date of 12 March 2018. This act includes updated provisions regarding statutory recognition of advanced care directives.

https://www2.health.vic.gov.au/hospitals-and-health-services/patient-care/end-of-life-care/advance-care-planning

Office of the Public Advocate (OPA) powers of attorney information, plus medical consent and refusal of treatment

The Victorian Office of the Public Advocate is empowered by law to promote and safeguard the rights and interests of people with disability. The OPA website includes access to forms and information about  planning for the future and medical decision making.

https://www.publicadvocate.vic.gov.au/

End of Life Law in Australia website

The End of Life Law in Australia website is published by the Australian Centre for Health Law Research (ACHLR) of the Queensland University of Technology. It is designed to provide health practitioners and the broader community with information about Australian laws relating to death, dying and decision-making at the end of life.

https://end-of-life.qut.edu.au/

Australia - Projects/campaigns promoting conversations about dying and death

Dying to talk website, including Discussion Starters

Dying to Talk is a website of Palliative Care Australia that encourages Australians of all ages and levels of health to talk about dying. Dying to Talk aims to reach into the community to normalise dying in Australia and to help Australians work out what’s right for them at the end of their lives. The website includes stories, a Life in Death art competition and a Dying to Talk Discussion Starter to help people initiate conversations with family and friends. There is also a Aboriginal and Torres Strait Islander Discussion Starter that was developed with support from the Congress of Aboriginal and Torres Strait Islander Nurses and Midwives (CATSINaM).

http://dyingtotalk.org.au/

Death Over Dinner Down Under

Death Over Dinner (DOD) was originally designed in the USA by Michael Hebb and Angel Grant (see link to TED talk) to encourage people to have conversations about end of life and end of life care at the kitchen table rather than in the Intensive Care Unit. DOD aims to educate people on the value of making decisions about their wishes, and expressing them to their loved ones, by inspiring a series of uplifting and interactive dinners to transform the seemingly difficult conversation about death into an intimate, shared experience. The DOD website provides a range of tools, reading and support materials, as well as tips to get the conversation started. An Australian and New Zealand version of DOD has been established under the name Death Over Dinner Down Under.

http://deathoverdinner.org.au/

The Groundswell Project

The mission of the Groundswell Project is to develop innovative arts and health programs that create cultural change about death and dying, while championing others to do the same. Projects associated with the Groundswell Project include Dying to Know Day and Compassionate Workplace.

http://www.thegroundswellproject.com/

Dying to Know Day

Dying to Know Day (D2Kday) is an initiative of The Groundswell Project that aims to promote death literacy, bringing to life conversations and community actions around death, dying and bereavement. It was inspired the charity Igniting Change (formerly Pilotlight Australia) and their book ‘Dying to Know: Bringing death to life’. D2KDay is officially on August 8th each year, however people are encouraged to host events anytime during August.

http://www.dyingtoknowday.org/

Compassionate Workplace

Compassionate Workplace is an initiative of The Groundswell Project that runs workshops and forums to educate organisations to empower internal social networks of caring people. The goal is to make it easier for people to talk with someone who has a loss – for people to be more courageous and authentic in how they respond to colleagues dealing with a death.

http://www.compassionateworkplace.com.au/

Compassionate Communities Network

Compassionate Communities Network aims to promote and integrate social approaches to dying, death and bereavement in the everyday life of individuals and communities, by:

  • identifying and promoting leading practices in the field of public health and social approaches to dying, death and bereavement and embed these in public policy
  • leading and advocating for and contributing to, palliative care and end-of-life social policy
  • encouraging, establishing and strengthening partnerships that support community capacity building and resilience in issues surrounding dying, death and bereavement
  • furthering research in the field of public health/social approaches to dying, death and bereavement in culturally diverse communities.

http://www.compassionatecommunities.net.au/