Carers, families and friends

Palliative care explained

What is palliative care?
This brochure from Palliative Care Australia explains what palliative care is and what it involves, including care for the person with a life-limiting illness, their friends, family and carers.

http://palliativecare.org.au/what-is-palliative-care/

Living, dying and grieving well: a guide to palliative care
This booklet published by Palliative Care Victoria in collaboration with other organisations provides information about palliative care for the person diagnosed with a life-limiting illness, as well as their carers, family and friends.

http://www.pallcarevic.asn.au/library/for-families-patients/fp-about-palliative-care/

Affirming life: What is a palliative approach – a guide for family and friends with loved ones in aged care
This booklet, developed by a range of organisations including Palliative Care Victoria, is designed to help family and friends understand the palliative approach provided in residential aged care and to encourage their involvement in care.

http://www.pallcarevic.asn.au/library/for-families-patients/fp-carer-support/

Caresearch: Patients, carers and families
Caresearch is a website designed as a knowledge network, to provide information and resources for people wanting to know more about palliative care.

http://www.caresearch.com.au/caresearch/tabid/64/Default.aspx

Palliative care information in community languages

Palliative Care Victoria provides information about palliative care in languages other than English.

You can access information in the following languages from their website:

  • Arabic
  • Chinese (simplified)
  • Chinese (traditional)
  • Croatian
  • Greek
  • Italian
  • Macedonian
  • Maltese
  • Polish
  • Turkish
  • Vietnamese

http://www.pallcarevic.asn.au/families-patients/community-languages/

Caring for someone with a life-limiting illness

Support for Carers

Carers Victoria is a statewide voice for family carers representing and providing support to carers in Victoria.

https://www.carersvictoria.org.au/

Supporting a person who needs palliative care: a guide for family and friends
This guidebook published by Palliative Care Victoria provides a range of information, tips and strategies for family carers of people diagnosed with a life-limiting illness who require palliative care.

http://www.pallcarevic.asn.au/library/for-families-patients/fp-carer-support/

Resources for carers
This pamphlet lists some of the services and assistance available to carers, including income support, concession and benefit cards, domiciliary services and transport.

http://www.pallcarevic.asn.au/library/for-families-patients/fp-carer-support/

Looking after yourself

Looking after yourself
This pamphlet published by Palliative Care Victoria lists some suggestions for how to look after yourself when you’re caring for someone with a life-limiting illness.

http://www.pallcarevic.asn.au/library/for-families-patients/fp-carer-support/

How can I support my friend or family member?
This booklet published by Palliative Care Australia provides helpful information on how you can support someone living with a life-limiting illness, including understanding the emotions of their experience.

http://palliativecare.org.au/how-can-i-support-my-friendfamily-member/

Financial and travel assistance for carers

Payments for carers
The Australian Government Department of Human Services website explains the different payments available to carers, based on the eligibility criterion.

https://www.humanservices.gov.au/customer/subjects/payments-carers

Victorian Government Carer Card

The Victorian Government run a Carer Card program. Eligible cardholders can access discounts and benefits on offer from a variety of businesses, local government and community organisations. They are also entitled to free travel on public transport on a Sunday plus two return off-peak travel vouchers each year.

http://carercard.vic.gov.au/home

Companion Card

As described on the companion card website, the Companion Card “promotes the rights of people with a disability, who require a companion, to fair ticketing at events and venues. Companion card is a National program administered by the state you live in.”

http://www.companioncard.org.au/

Advance care planning

Additional resources on advance care planning can be found here.

Advance Care Planning Australia 

This website published by Austin Health in Victoria provides extensive information about advance care planning.

http://advancecareplanning.org.au/

Office of the Public Advocate
This Victorian Government website provides information and resources for people wishing to nominate powers of attorney.

http://www.publicadvocate.vic.gov.au/power-of-attorney

My Values
This website published by Barwon Health allows users to create a profile, respond to different questions concerning what they value for their future care and to receive a report that explains what values are important to them.

https://www.myvalues.org.au/

Care in the last stages of life

The process of dying
This pamphlet published by Palliative Care Victoria explains what happens when a person is dying and the signs and symptoms that may be present.

http://www.pallcarevic.asn.au/library/for-families-patients/fp-symptoms/

Understanding the dying process: an information booklet for families
This booklet published by the WA Cancer and Palliative Care Network explains the dying process and the physical and emotional signs and symptoms that may be present. It also explains the practical things that need to be done after someone dies.

The booklet can be accessed from the Health Networks (Western Australia Government) website via:

http://ww2.health.wa.gov.au/~/media/Files/Corporate/general%20documents/Palliative/Patient%20information/UnderstandingTheDyingProcess.ashx

What to do following a death

This page of the Australian Government Department of Human Services website contains information on what to do following a death, including who to notify and how to access assistance such as financial assistance or grief counselling.

https://www.humanservices.gov.au/customer/subjects/what-do-following-death#a8

Grief and bereavement

Understanding grief
This booklet published by Palliative Care Australia explains what grief is, the thoughts, feelings and sometimes physical reactions a person can experience and where to find further help.

http://palliativecare.org.au/understanding-grief/

Australian Centre for Grief and bereavement booklets
The Australian Centre for Grief and bereavement has published a series of booklets about grief and bereavement. The topics covered include:

  • About grief
  • Grief, anniversaries and significant events
  • How to help someone who is grieving
  • Children and grief (Pre-school, ages five and under)
  • Children and Grief (Primary School, ages 6-12)

The information sheets can be accessed from the Australian Centre for Grief and bereavement website via:

http://www.grief.org.au/ACGB/Publications/Resources_Bereaved/Grief_Information_Sheets/ACGB/ACGB_Publications/Resources_for_the_Bereaved/Grief_Information_Sheets.aspx?hkey=19bfe37f-d79f-4e70-85e7-82b94bca248b

The Australian Centre for Grief and Bereavement (counselling service)
The Australian Centre for Grief and Bereavement provides counselling for individuals, children and families after the death of someone close to them.

They can be contacted on 03 9265 2100 or by email on

Australian Centre for Grief and Bereavement counselling services

Disease-specific information and support for carers

There are a few websites that provide health information on a variety of topics. These sites are listed below.

Better Health Channel
The Better Health Channel is published by the Victorian Government Department of Health and Human Services.

https://www.betterhealth.vic.gov.au/

Health Direct Australia
The Health Direct Australia website is produced under a project that is funded by a collaboration of Australian federal, state and territory governments.

http://www.healthdirect.gov.au/

My Aged Care
The My Aged Care website is published by the Australian Government and designed to help people learn more about and navigate the aged care system in Australia.

http://www.myagedcare.gov.au/

Cancer

Caring for someone with cancer (Peter MacCallum Cancer Institute)
This section of the Peter MacCallum Cancer Institute (Victoria) website contains a series of PDF booklets for carers. Titles include Caring for someone with cancer, Caring for a cancer survivor: tips for coping, Emotions and cancer: a guide for people with cancer, their families and friends and How can I help: supporting someone with cancer.

https://www.petermac.org/services/cancer-information-resources/caring-someone-cancer

Dementia

Dementia Australia

https://dementia.com.au 

Heart disease

Heart Foundation
The Heart Foundation provides information about heart conditions, healthy eating and other topics. This includes information for those living with heart disease or people who may have questions After my heart attack.

https://heartfoundation.org.au/

 

Kidney disease

Kidney Health Australia
The Carer support section of the Kidney Health Australia website provides information for carers of someone with kidney disease, including access to respite and financial support.

https://kidney.org.au/

 

Lung disease

Lung Foundation Australia
The Supportive and palliative care section of the Lung Foundation Australia website provides information for patients and families about supportive care for chronic lung diseases.

http://lungfoundation.com.au/patient-support/living-with-a-lung-condition/support-and-palliative-care/

Motor Neurone Disease (MND)

MND Australia

https://www.mndaust.asn.au/Home.aspx

 

Parkinson’s disease

Parkinson’s Australia
Parkinson’s Australia provide information about Parkinson’s disease and information sheets on relevant topics, as well as other resources.

http://www.parkinsons.org.au/

Caring at home

Loddon Mallee Carers Kit

The Loddon Mallee Carers kit is available as a series of information sheets and can be accessed via the Loddon Mallee Regional Palliative Care Consortium website.

http://www.lmrpcc.org.au/health-care-workers/resources/

Caring safely at Home Project

Various resources from the Caring Safely at Home Project are available from the project page of the Caresearch website.

https://www.caresearch.com.au/Caresearch/tabid/2145/Default.aspx