Palliative Care for people with disabilities

Easy read resources for people with a disability

End of Life and Palliative Care for People Living with a Disability

The Better Health Channel provides end of life and palliative care information for people living with a disability including planning ahead, choosing a preferred site for care, and advance care planning. Click here for more information

Palliative Care Easy Read Resource

Palliative Care Victoria and VALID have created new resources to help professionals talk to people living with a disability about palliative care, death and grief.

You don’t have to navigate those challenging discussions on your own. There are health professionals and case workers you can lean on for help and Palliative Care and VALID have developed  easy-to-read and easy-to-digest tools and resources available to help people have those difficult conversations. Click here

Victorian Government guidelines and policies: disability and palliative care

Disability Residential Service Palliative Care Guide

The Guide aims to improve the quality of life of disability residents with a life threatening condition.  It describes the important role of palliative care providers in the provision of end-of-life care to disability residents.  It steps the reader through the main areas for support and identifies documents, training and resources available and where to find them. Click here

Victorian Government Department of Health: Disability information

The human services section of the website of the Victorian Government Department of Families, Fairness and Housing provides a range of information about services for people with a disability. This includes information about National Disability Insurance Scheme (NDIS) and facts sheets about arrangements between the Victorian and Australian governments to ensure, in the context of the NDIS, ongoing access to specialist disability services for people with a disability aged 65 years and older, including people living in state government funded supported accommodation.

The Office for Disability

The Office for Disability is the first of its kind in Australia and leads the Victorian Government’s drive for universal change to improve the lives of people with a disability.

The office was set up to work with private and public sector partners to promote the government’s long-term vision for inclusion and help improve community attitudes.

 

Resources for caring for people with disabilities

Talking End of Life …with people with intellectual disability (TEL)

Shows you how to teach people with intellectual disability about the end of life.

TEL is designed for disability support workers but is also helpful for others including families, health professionals, and educators.

Watch the video to see Professor Roger Stancliffe from the University of Sydney describe why TEL is important.

Go to the Modules tab to start using TEL.

https://www.caresearch.com.au/tel/tabid/4881/Default.aspx

Pain Assessment

If you scroll down this Caresearch page you will find a link to a range of information and tools about pain assessment including the following assessment tools:

Wong Baker Faces tool: A pain assessment tool developed for use in children, suitable for anyone over the age of 3.

Abbey Pain Scale (125kb pdf): A pain assessment tool developed for use in those with dementia who are unable to communicate.